Parents and Carers

Support for parents or carers.

Solace SG also supports children and parent/carers living with the challenges of Sickle cell and Thalassemia either living in Hackney or using the services of Homerton Hospital or The Royal London hospital.

Following many discussions with parents/carers who do not come to our evening monthly gatherings, who have stated that it is inconvenient for them to attend as it gets in the way of bedtimes and can be difficult especially when childcare is an issue with more than one child to care for.  We have just started a new coffee morning on Saturdays.

The purpose of these coffee mornings are to primarily be a space for us to discuss all and any issues which we need help with and an information gathering opportunity for us all to learn from each other. We intend to invite speakers from the hospitals such as specialist nurses; doctors; consultants and other relevant health care professionals. We will also invite representatives from the Sickle Cell Society to inform us how they will continue to support children living with these conditions. T

he first one was on Saturday 4th March 2017 and will repeat on on a six weekly basis as follows:

  • 8th April 2017
  • 27th May 2017
  • 8th July 2017
  • 19th August 2017
  • 30th September 2017
  • 4th November 2017
  • 16th December 2017

 

The venue is our office based in Dalston

It is a small office so please only bring your child if you absolutely must.  these gatherings are also a safe space for us to discuss our feelings and ideas – even if they are difficult to explore. Sometimes, we just need some quiet and private headspace.

If you haven’t already, please click on the link to become a member of Solace SG:

The Sickle Cell Society is a national charity championing the cause for Sickle Cell, campaigning and raising awareness and funds for smaller community support groups, individuals and children who struggle with this terrible disorder. There are a variety of free children’s activities which are currently running. If you would like your child to take part, please click on one of the links below.

Each year, they fundraise for and provide a free holiday for around 30 children up to 15 years old to have fun by taking part in many activities and meet other children in a safe environment. They are cared for by several carers who understand the condition. There are medical staff in attendance also who take care of illness and daily medication.

If you would like your child to have a break away, please email Jessica Boatright who is the new children’s activities coordinator:

Please remember that membership to the Sickle Cell Society is now free:

We look forward to seeing you very soon at our next monthly evening gathering and/or our next 6 weekly parent/carer coffee morning.